Posts tagged ‘Children’

Good evening, Brandon watchers! Sorry it took so long for me to post tonight. I was at the hospital this afternoon and evening, and then ran into some minor computer problems when I got home, so this is the first opportunity I have had to give you an update.

Brandon has been off the ventilator since Tuesday afternoon. He had the swallow evaluation done this morning (all is well with that), and was given permission to eat or drink whatever he wants, although his appetite is still not very good. Tonight for dinner, he ate less than 1/2 of his food before he decided he was done with it. His throat is still somewhat tender, and so it is a bit uncomfortable to swallow solid food. He seemed to do OK with his mashed potatoes, but the sandwich was a bit much.

Other bits of progress: this morning he had his last catheter removed, and so now he is down to the PICC line being the only invasive connector left. They will probably leave that in until he is ready to go home, as it makes giving all his IV meds very easy. He was able to graduate from the oxygen mask to the nasal cannula, but with the cannula on, his O2 is a little lower than it is with the mask, so they are keeping an eye on his levels. His O2 drops rather dramatically whenever he is more active – anything from shifting to a sitting-on-the-edge-of-the-bed position after having been laying down to standing and/or walking a few steps around the room (as far as his oxygen tubing will let him go). Because of that, they decided in the middle of the day today not to move him off ICU just yet, but we may see that happen in the morning, depending upon how he does in the overnight. Regardless, he is still rather weak and tires very easily, so we are trying to keep him calm and let him get as much rest as possible.

Prognosis at this point is very good. If he continues to improve as he has, there is still a good chance he would be able to be home in time for Christmas. Whether that means Saturday or Sunday, we are still not sure and will not have a better approximation until after they move him to the medical floor. One of the nurses said yesterday that, once he is transferred out of ICU, he will probably need a couple more days in the hospital before they will let him come home, and then it will be with instructions to take it easy for a while longer, so even if he is home in time, I am thinking a quiet, laid-back Christmas is in order.

I will be heading back up to the hospital tomorrow, late morning. Again, if anyone would like to come by, just touch base to see how he is faring and where we are. He is loving all the messages of good will and the visits from family & friends, so don’t be afraid to drop by. Just please remember that he is still recovering, so we will ask you to keep visits on the shorter side! Thank you, again for all your prayers and words of encouragement!

Stand when you sing it . . .


(Please read the entire post if you are interested in visiting.)

Brandon was taken off the vent this afternoon and is making progress by leaps and bounds. As of 7:00 tonight, no vent, no radial artery line, no central line (although he still has the PICC line in and will have that for a while), no solid waste catheter, no antibiotics (he gets treatment meds by injection through the PICC line), no pain med IV (he is still getting occasional injections of pain med), and no NG tube! He is still receiving oxygen through a mask, although the nurse said tonight that if he keeps improving, by tomorrow he may be able to graduate to a nasal cannula for his oxygen, which will make talking way easier. He is still a little groggy and wears out very easily, especially after he gets his pain meds, but we will take it!

Right now, Brandon cannot have anything to eat or drink. Hospital protocol says that anyone who has been intubated for more than 48 hours must pass a swallowing evaluation before they can resume eating and drinking, and they will not perform the evaluation until at least 24 hours after the removal of the vent tube (to allow the throat to rest and recuperate). Once he passes that, he will be on an unrestricted diet and can have anything he wants, but they will probably start him off with soft food first, just to go easy on the throat.

Looking forward, once staff determines that Brandon’s condition no longer requires the level of treatment provided in the ICU, they will relocate him to either the intermediate (step-down) unit, or possibly just a regular medical unit, and that could be as soon as tomorrow afternoon (once he has had the swallow eval). After he is moved, he is going to require some minimal physical therapy, just because he hasn’t been on his feet for over a week, but once they have him disconnected from everything and any further treatments can be managed at home, and he is able to be up walking around, it will be HOMEWARD BOUND! Maybe even in time for Christmas!

Anyway, if you are planning on visiting in the next couple of days, please be sure to touch base with a family member to find out for sure what room Brandon is in and how he is faring as far as receiving company. Also, once he is in a regular room, he can get flowers, food, & gifts brought or sent to the room. E-cards sent through the hospital system can be addressed to C. Brandon Forbis with no room number, and as long as he is a patient, he will get them no matter where he is. Thank you for your continued prayers! Miracles do happen!


Good news, Brandon watchers! Brandon is doing better this morning, and the meds they have him on seem to be doing the job. His oxygen through the vent is at 50% (they had increased it late yesterday to 60%, but were able to bring it back down this morning), but the pressure was reduced this morning, which is really good news. He was sedated this morning to have his PICC line inserted and all went well with that procedure. The docs decided not to redo the radial artery line. While it is normal procedure for them to change them out if they were done at a different hospital, they said this morning that, since the tests they are running through that line are only being done a couple of times a day, if they take it out they are not going to put a new one in, so they will just leave the one that’s there.

In other news, Brandon has developed a fungal skin rash on his back that is somewhat common for patients who spend a lot of time in bed, but the staff is treating with a topical cream and his nurse is going to investigate possibly adding an anti-fungal med through the new PICC IV line . . .

When I left the hospital last night, word on the street was that Brandon would be on the vent for another several days, but as of this morning, they think he may be able to come off the vent a little sooner, so I will keep you posted. Please keep up the prayers – they are doing amazing things!


We have a diagnosis! Confirmed by pathology! ARDS (Acute Respiratory Distress Syndrome) with an underlying cause of Acute Eosinophilic Pneumonia. The treatment is steroids & antibiotics, but he will probably have to stay on the ventilator for another several days. If everything goes well, hopefully, he will be home in time for New Year’s. In the meantime, keep the prayers coming, and any messages of encouragement will be passed along ASAP.

A link to the Wikipedia page about EP is here.

For anyone who would like to share a message with Brandon, OSF has an e-card option on their website. Here is the link. Just remember when you are filling out the patient information, he is registered here at the hospital as Christopher B. Forbis, room 4121.